The WISCONSIN MYALGIC ENCEPHALOMYELITIS / CHRONIC FATIGUE SYNDROME ASSOCIATION, INC. is a non-profit corporation dedicated to assisting patients within the state of Wisconsin. Its purpose is to act as a clearinghouse for CFS information within the state of Wisconsin; to assist patients and their families; to encourage communication among agencies, institutions and concerned individuals; and to promote research on the cause, cure and ultimate prevention of chronic fatigue syndrome. Read More.
Recently, a group of 14 ME/CFS patient organizations and 19 independent advocates submitted a joint letter to the Department of Health and Human Services requesting Secretary Sebelius to convene a meeting between the ME/CFS community and DHHS to discuss the concerns of ME/CFS patients and to begin formulating a strategic, coordinated and fully-funded response to the challenge of ME/CFS. The letter was sent to Secretary Kathleen Sebelius, Assistant Secretary Howard Koh, M.D., Deputy Assistant Secretary Nancy Lee, M.D. and the CFSAC.
The Wisconsin Me/CFS Association, Inc. contributed to this letter and was one of the signers. We did this because we strongly believe that we can more effectively advocate for the needed changes if we come together and jointly call for DHHS to make a more strategic, coordinated, integrated and fully-funded response to the challenge of ME/CFS. This is the only way for all of us to finally get our lives back.
Writing the letter to Secretary Sebelius is just the first step. We are now preparing more fully for the requested meeting. If you have any feedback on the letter, please feel free to contact Pat Fero or send an email to firstname.lastname@example.org.
Finally, please take a minute to sign the petition which supports the letter and asks Secretary Sebelius to convene this meeting. And ask your family and friends to sign the petition on your behalf. This is important. The more people we can get to sign the petition, the greater will be our chance of success.
Together, we can make this happen and change our futures!!
The organization publishes a quarterly newsletter, the Lifeline. It contains information about support contacts, notices of meetings and seminars around the state, and current articles about CFS research and treatment. In addition, we publish poems, stories and cartoons. We feature a column called MY TURN which provides an opportunity for patients to share an experience that might help others. As a subscriber, you will also receive NEWS BITS, a flash news mailing about important events or new research. Wisconsin's priority is sharing information that might help you and your family.
Please look at our membership categories! For those who are unable to pay the membership fee due to financial hardship, a full waiver or partial waiver of dues is available. Get your free sample now!
||This organization is a Gold-level GuideStar Exchange participant, demonstrating its commitment to transparency. EIN 39 1614649 (since 1987) Approved 501 c 3
About ME/ CFS
Chronic fatigue syndrome (CFS) is a debilitating illness that affects adults and children alike. The illness is also known as chronic fatigue immune dysfunction syndrome (CFIDS) or myalgic encephalomyelitis (ME). The National Institutes of Health has selected three research facilities to study the illness. A network of support group organizations exists nationwide to help patients and their families. Learn more.
Check out the latest conferences, meetings and seminars. WI ME/CFS Association Inc. board meetings are open to the public. Executive Committee meetings are held once a month in Madison. Please e mail Pat Fero for details.
24-Hour ME/CFS Forum
This is a forum to express your feelings about CFS, share information or provide support to others. Go to Forum
"The Faces Of ME/CFS"
A fascinating, well written collection of essays about living with CFS, reprinted from a WI ME/CFS Association publication. Read more
Planning for Surgery
Drs. Lapp & Cheney have created two valuable documents that can be shown to your doctors and anesthesiologists when planning for procedures or surgery. Please click on links below to download.
Anesthesia letter by Paul Cheney
Anesthesia letter by Charles Lapp
Anesthesia card Print and fold in half
Notice: XMRV: Red Cross Now Barring Blood Donors Who Have CFS Health Blog
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