K I D' P A G E

 

PROGINOSKES WEB - An introduction - Pat Fero - Believer

In the book, A Wind in the Door, by Madeline L'Engle, Proginoskes is a hundred winged, glistening eyed Cheribum dragon who helps a pale little boy named Charles Wallace discover what is real.

Charles has dark circles under his eyes. He looks and feels exhausted. School personnel think he's a "problem" child and they don't believe he is ill. Both his parents know that Charles is really sick, but they can't prove it. Interestingly enough, Charles' mother is a scientist studying the mitochondria that exist within each cell. She is working to prove that tiny life giving farandolae exist within the mitochondria even though they can’t be seen.

Charles sees Proginoskes first and never questions that the beautiful creature is real. He understands that his parents, being scientists, do not believe in dragons and yet Charles sees them striving to find the truth about what is real in their own work.

The point of the book is to say that truth is not one thing, but layers of imagination and reality. To adapt is to know that "things" are not often what they seem and that "intellect is an extraordinarily inaccurate instrument." New and different things that can't be seen, touched, measured, and labeled are often disregarded until someone provides "proof."

At what point then does something become real? Is it real when the idea takes shape in the imagination? Is it real when the imagination leads to the experience? Is it real when the intellect interpretes the experience?

To believe in Proginoskes is to know that what is real becomes so as soon as one believes it, not as soon as someone else says, "Aha! This is true!" Chronic fatigue syndrome in children is real. Kids who don’t know one another and know nothing about CFS describe the same experiences using the same words. After a few hours at a group meeting, they have the same candle wax pallor.

As an advocate and former educator, I am one voice, and when I say I believe, it contradicts the actions, opinions, and inferences of adult communties who, by their disbelief, create a web, trapping the kids into doubting what they feel, think, and know. This is far more dangerous for the growing child than a misdiagnosis.

This page is dedicated to the Wisconsin 56, the first kids on my list. Long ago they anguished over the disbelief, impatience and impertinence of a school and medical community who ultimately did grevious damage to their self esteem.

In 1999, the situation is better. Let me know what you think of Proginoskes Web site. Please register to be counted.

 

January 1999
Pat Fero, MEPD
Executive Director
Child/family Advocate
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