Join us in the Parents' Corner
This past August, Rebecca Moore and I joined forces to become cofounders of the new website The Pediatric Network. Many of you have already become members and I thank you for your support and participation. For those who have not had the opportunity, I ask you to take a minute to visit our new site and forum. The website The Pediatric Network for Chronic Fatigue Syndrome, Fibromyalgia, and Orthostatic Intolerance can be found at www.pediatricnetwork.org <http://www.pediatricnetwork.org> . It offers a wealth of resources and articles on a variety of topics from Medical issues to Educational, from Parenting to Coping. It is a wonderful place for us as parents to meet for support and understanding and also has sections devoted to our children where they will find the understanding that only another child/adolescent suffering from this illness can provide as well as a special place for their healthy siblings!! The Youth Chat Section is not all about the illness, but is a fun place the kids gather and chat about many areas of their lives. Megan has found connecting with others online a tremendous coping tool. It has given her strength and perspective, compassion and a sense of humor about the illness. It has been a very positive thing for her. I am hoping to develop the Parents Corner to offer the same kinds of qualities to parents who wish to visit. And our Siblings Club is for the often left out siblings who also need a private place to discuss their issues and thier hopes and dreams as well as ask questions and get support from others in the same boat.
The forum has been a wonderful active network of people who have come together to share a common bond, life with CFS/FM/OI or living with it in a family member, friend, patient, or other. I have truly benifited from the heartwarming contacts that I have had with the wonderful people who are visiting. I am writing because the parents forum has suddenly gotten very quiet, and I thought it may be because many of you do/don't know that we are there, you forgot our address, or life is too overwhelming right now to drop in. I wanted to let you know that you are missed. If things are going great in your child's life, please share your news. If your days are consumed with living minute to minute, think about stopping by for a fast boost from those of us who are going through some rough times ourselves. Maybe you would like to check out our newest section with inspirational quotes and humor posts for a fast lift to your day. Whatever the reason, I hope to see you soon in the Parents' Corner. I would love to hear what you and your child are up to, how things are going, and if there is any way we can better help you to get through another day.
My very best to each and everyone of you and to your children.
Mary Z Robinson
PS ( There is a flyer that we have available on our website, at the bottom of the home page, that introduces the Pediatric Network and is suitable for downloading and printing to share the network with your child's teachers, school personell, doctors, nurses, therapists and family.)