CFS Contact Lists

To receive a free packet of information or for any other inquiries, please send your name and address with request to: Wisconsin ME/CFS Association: 747 Lois Drive, Sun Prairie, WI 53590. Or if you prefer to call: Phone (608) 834-1001. Or E-Mail: wicfsme@yahoo.com or bp.fero@charter.net

1. SUPPORT GROUPS, LEADERS & CONTACTS

Appleton / Fox Valley
     Contact: Geraldine Baumgart
     Phone: (920) 731-2697
     Email: whatadaze@aol.com

BELOIT / Janesville
    Contact: Sue Gallagher
    Phone: (608) 676-4059
    Email: gveronica2000@yahoo.com

CHIPPEWA FALLS
    Contact: Bev Hager
    Phone: (715) 723-2734
    Email: dbhag@sbcglobal.net

Eau Claire Area
   Contact: Ellie Strand, MSN, ANP, BC
   Phone: (715) 271-5710
   Email: mes@alumni.musc.edu

MADISON
    Contact: Barb Gutweiler
    Phone: (608) 271-7757
    Email: barbgutweiler@yahoo.com

   Contact: Barbara Hanaway
   Phone: (608) 222-4068
   Email: bhanaway@aol.com

Contact: Thersa Ulrich
Phone: (608) 834-0778
Email: taucfs@charter.net

MILWAUKEE
    Group facilitator: Nancy Hall
    Phone: (414) 559-3335
    Email: nancyhallatr@gmail.com

Group facilitator: Janet
Phone: (414) 964-0319

OTHER MILWAUKEE CONTACTS
    Contact: Ric Fuchs
    Phone: (414) 540-0172     Cell: (414) 687-0239
    Email: rfuchs2@wi.rr.com

   Contact: Deborah Ullenberg
   Phone: (414) 645-4561
   Email: Yellowbrkrd21@yahoo.com
   (Also: PR & ADVOCACY)

MOUNT HOREB
Contact: Michelle
Email: chezmichelle@charter.net

PLATTEVILLE AREA
    Contact: Lois Menninga
    Phone: (608) 943-8028
    Email: loismenninga@dishmail.net

RACINE/KENOSHA
    Contact: Judy O'Conner
    Phone: (262) 886-1277

RIVER FALLS
    Leaders: Mimi Trudeau
    Phone: (715) 425-8183
    Email: mimi.doggie@gmail.com

SHEBOYGAN
    Contact: Pam Wynveen
    Phone: (920) 458-4302
    Email: Larrypam1010@msn.com

VIROQUA
   Contact: Jill Lynch
   Phone: (608) 637-8246
   Email: j.lynch@charter.net

WISCONSIN KIDS
Pat Fero - (608) 837-9540 bp.fero@charter.net

NOTE: Long distance phone calls to support group leaders and contacts will be returned 'collect'.

Membership in the association is required of all support group participants.

2. E MAIL NETWORK

E mail is a confidential one on one communication preferred by many. The volunteers on this list, all CFS/ME patients have agreed to respond to you in a timely fashion. In the SUBJECT AREA please type in the word LIFELINE, so that the person receiving the message knows that it is about CFS.

newdawn2@compufort.com

3. WISCONSIN ME/CFS 24-HOUR ON-LINE SUPPORT FORUM

The Chat Forum is for people suffering with CFS to exchange ideas, feelings, laughs, sorrows and coping strategies with others.

Web site: http://www.wicfs-me.org

4. OUT OF STATE SUPPORT GROUPS

NEW YORK

New York Support Network, Inc. (NYSN), An organization for people with CFIDS.

NORTH CAROLINA

Kids Central Registry Please contact me if you are a parent or the legal guardian of a
child diagnosed with CFIDS, and you are willing to voluntarily share your child’s medical information. A database which tracks the children will be useful to share with researchers and I believe paramount to helping those affected by this illness.

NORTHERN VIRGINIA CFS & FMS Support Group

Northern Virginia CFS & FMS Support Group http://www.geocities.com/cfsnova

If you would like to be a volunteer on either the Listening Tree or the E-Main Network, please call Pat at (608) 837 9540 or e-mail wicfsme@yahoo.com

Contact list updated 4/18/08